Sunday, January 30, 2011

...

I didn't have to wait long for the passport. As soon as we told Immigration NZ we needed it, we got the passport the next day. We went to get finger prints from the local police station and the officer remembered who we were. He should, it's our 5th time in less than 12 months. We'll have that stuff off tomorrow and I believe that this is the last thing we need in to the Immigration before we get a decision from them.

There's such a thing as a re-entry permit to get back into the USA. I have to look more into that and the only reason I'll file the application is if Larry's appeal is denied.

Larry was taken off all medication for hypertension. Weight loss and dialysis is improving his high blood pressure and the medication was only lowering his BP.

Despite that decisions in our lives are in the hands of other people, we have to keep on living as if nothing is amiss. We spent 7 years under US Immigration pressure with a pending application and the last 2 years have been spent in the same boat with NZ Immigration.

I'm taking my life off of pause and moving on with it.

Friday, January 28, 2011

26-28 Jan

Zuchinni from our garden.

Roma Tomatoes

There's about 100 on 2 vines.

Emma's Double D Donuts.





Her competition left town.

Fish Tostadas!

Goodnight.

Thursday, January 27, 2011

I'm still waiting.

Immigration NZ need to send back Larry's passport before we can move on with requesting our 5th set of FBI Reports. The statutory declaration only counts for countries like Qatar, which I've never even heard of before. So, we wait for the passport to come back.

As of today, the payment for cataract surgery has not been made and so, we wait for the bill to be paid.

I sent an email to the Prime Minister of New Zealand and the Minister of Immigration and I'm still waiting for some kind of response.

The Residency Application has been in for 6 months now and all we've got from that is the run around and so, we continue to wait for a decision.

Four FBI requests in and nothing returned. Still waiting.

Green card situation. Still waiting.

That's pretty much our lives. Waiting for everyone else to determine our future. It's not a nice feeling waking up and knowing that tomorrow you may not be together or that in 6 months you could be living apart. I've said it before, other people hold our lives in their hands, go figure my irritability. That cloud is constantly over our heads.

As a Christian, we believe Jesus is coming soon.
I'd rather wait for that .. it seems he'll come before we hear back from any of the above mentioned.

Tuesday, January 25, 2011

25-Jan

Plum season.

Ma's tree's haven't had plums for the last couple of years.

Order arrived.

Monthly Order and Immigration.


The monthly dianeal order arrived today, of which, we're grateful.

The first drainage bag lastnight came out semi-milky. Milky fluid is a sign of peritonitis. To test this I usually put a page with text on under the fluid bag and if you can see through it, all is well. If you can't, things are about to hit the fan. I SMS'ed our nurse this morning and she quickly shot an SMS back to say all was well. Since we had not dialysed on Sunday at all the cavity had accumulated gunk and the gunk was drained. The two bags after that initial drain have been clear. Good news.

He can go back onto the machine tomorrow night.

I read through the Immigration NZ website today trying to find some loop hole re: Police Reports. If a Police Report is unobtainable, which in our case it's been 4 requests later and still nothing, then a statutory declaration can be written and sent in with character references. At this point, it's all we can do. We've sent in the character references. Immigration have Larry's passport, which is required to get more finger printing for police reports. We're going around in circles.

I always wanted to be in the circus.

Monday, January 24, 2011

Stuff.

I emailed the Minister of Immigration today. I basically forwarded him the email I sent to the Prime Minister, but revised it a little. He's the other person who will be able to do something to speed up Larry's application. We're going into the local police station tomorrow to get our 4th set of finger prints for the FBI, because Immigration need the police certificates to continue processing the application. The website says that in the case that you can't get a police report, there are other options .. like the character references. Apparently NZ Immigration didn't care for the ones we sent it and still require us to get the FBI reports. So we're paying for a 4th set.

We skipped dialysis yesterday because I used his last box of machine bags on Saturday night. He had an ok day today, but was starting to feel run down early evening. He's now on his last box of manual bags. The box should see us till the morning then I hope we're going to receive an order by Wednesday.

If you're religious you'll understand fasting. Tomorrow, we fast. No ball is in our court, zip, ning, none and we need a miracle to play ball.

23-24 Jan

It rained all night Saturday and all day Sunday. If it had rained like it was supposed to all day today until tomorrow afternoon, we would have flooded.

Tostada's for dinner.

With the recession and all, we've been having shared meals with my parents and other family members. We take turns making dinner for everyone.

The Mexican restaurant in town has Taco Bowl Salads for $12 each.

It cost $22 to make 6 of these.

We didn't have guacamole though, probably another $5 more.

This guy was outside my front door when I went to take the trash out this evening.

Sunday, January 23, 2011

Thanks

We can never thank everyone enough for the support last year. I totaled our medical bills just in 2010, just under 20k was spent on medical expenses alone. This includes surgeries, consultations, medicine (Recormon), trips to Auckland, hospital stays and the couple of sessions of dialysis we had to pay for ourselves. This would never have been done without the help of family, friends and the LightWave community.

We hope to hear this week re: cataract surgery.

On another note. I have disabled the commenting section on the blog for reasons such as spam and idiocy. Should you like to comment, feel free to open a thread at the Liberty3d.com forums.

Saturday, January 22, 2011

22-Jan

Quesadillas, Pico de Gallo & Guacamole.



6 months old - Darrell

Karaoke. Best way to end a Mexican meal.

21-Jan

Even 4 month old Carlos knows how to Facetime.



Her name isn't really Carlos. (see The Hangover)
I call her Carlos because it's better than her real name.

Friday, January 21, 2011

Low Blood Pressure

Amlodophine lowers blood pressure. He was taking 10mg for hypertension. The last specialist appointment we had in December the doc discussed weening him off of this drug, Not to shock his system, the ween began with taking two 5mg dosages a day afterwhich one would be stopped and he'd only have one per day.

We were still at the two 5mgs per day. His blood pressure was critically low a few days ago and I called the specialist who stopped the amlodophine, period. We've experiences some biological drama, which we were told to expect - by stopping mid-ween, but this is ok. His blood pressure is back to normal.

The low pressure has been caused by a combination of medication, fluid removal from dialysis and the heat.

Thursday, January 20, 2011

20-Jan

Tamales in NZ? Que!?








Wednesday, January 19, 2011

Blood Pressure

77/49.
Not good at all.

He's slowly being weened off of the medication for hypertension. The low pressure is a sign that he needs to come off of a couple more. The feeling of being light headed and a combination of de-hydration is a cause for concern.

Renal failure is a hard illness to wrap your head around. How are you supposed to avoid being dehydrated when you have a fluid restriction of a liter a day.

S.U.C.K.S

16-19 - Jan

The new expressway round about .. will be done in March.


Cheese & Onion Scones.

Tuesday, January 18, 2011

Immigration ..

Without going into specifics, 30k was spent on medical expenses in 2010.
What needs to happen now is NZ Immigration need to come to a decision on whether or not Larry is granted residency. It doesn't look good, but at the moment it's our only option.

We don't have monies to move to India. He doesn't have his eye sight to work in the UK. I can't get into the USA (for now) and I really don't want to move to Costa Rica.

We need to fight the battle here before we look into alternatives. We still have two bridges to cross here, 1 being denied residency pre-appeal and 2 being denied residency post-appeal.

It's come down to the FBI reports that we've requested three times. We both require police certificates from the USA and NZ and after paying each time, the FBI have not sent the needed paperwork, but they've deducted the fee each time. Bigger and better things in America to tend to I suppose.

That's all.

Monday, January 17, 2011

4 months.

We've been dialysing for 4 months now and it's been a good run so far regarding Larry's health. The last couple of days have been low. I don't know if it's the heat we're enduring here at the moment, whether it's the manual bags (we are out of auto bags so he has been off the machine for about a week now), stress or that the dialysis treatment is relapsing. With minimal eye sight I can understand the stress.

We still have not yet received the months supply of dianeal fluids because it has not been paid for, not a fault of ours.

I hope we're still in New Zealand in 4 months.
I hope he's still with me in 4 months.

Saturday, January 15, 2011

Do. There is no try.

We have 5 days of dialysis fluid left. We haven't had this months delivery because it hasn't been paid for. Sometimes it's uncomfortable following up on a payment when you aren't making the payment yourself. You can't make dialysis bags stretch like you can money.

Nothing from Immigration. Larry's hinted about moving to Mexico or even India if it all turns sour. I don't like to think that far ahead and it depresses me to think we may have to pack up and start all over, again. Two democracies dictating our lives.

No dice on the cataract surgery yet either.

It all blends perfectly if it happens the way we want it to.
Cataracts = eye sight. Eye sight = work. Work = income. Income = being self sustaining.

It seems that even a triple dose of the force won't get us out of this one.

10-15 -Jan

Nazareth went fishing.

Kahawai and a Kingfish I think.

Sunset in Bridge Pa

And again.

Found Poppa's old All Black trunk from the 1930s.

Tuesday, January 11, 2011

Drained.

Woke up today to pool of drained solution all over the bedroom floor. Larry thought the drain bag had exploded, but that wasn't the case. I hadn't checked everything thoroughly and forgot to clip a drain clamp shut (to avoid scenarios like this). 16 liters of drained solution all over the carpet.

Rented a rug doctor cleaner device from the grocery store and pulled it all out. Problem is, the solution is mostly glucose and will attract ants.

You're entitled to a screw up when you man the ship by yourself.

I need a babysitter for 2 days, just so I can sleep.

I emailed the prime minister a couple of nights ago. I hope he reads the email, it gives a brief of our story and then my plea for him to do something about Larry's residency application. I don't know what to expect as an outcome. I didn't vote for the man myself and he's justified my reasons for not voting for him in the last year, but I can still hope he pulls an integrity rabbit from his political hat.

Monday, January 10, 2011

The Prime Minister

I don't know why I didn't think of it before. The light bulb went on during church today to email the prime minister of New Zealand as a last resort.

Please hold ...

Sunday, January 9, 2011

9-Jan

Prepping Tyler for nursing school next year.

Hand wash.

Breaking the frangible on the manual bag.

Opening the twist clamp to drain in.

We broke the sabbath for ice-cream.

Sunday storms.